Dravet Syndrome occurs in around 1 in every 15,000 ... Ms De'ath said waiting for a diagnosis left them "feeling so helpless and praying for our son". She said they googled Dravet Sydrome and ...

Tamara Ward set herself the challenge to help people with Dravet Syndrome that her nephew ... as there were people affected but without a diagnosis. "It's also important for us to find families ...