Case 024 Adrenoleukodystrophy
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Case 024 Adrenoleukodystrophy
838 viewsMay 26, 2019
YouTubeDr.Hisham AlKhatib
Adrenoleukodystrophy MRI Brain Case #shorts
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Adrenoleukodystrophy MRI Brain Case #shorts
270 views2 months ago
YouTubeDEEP RADIOLOGY
X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs. #genetics #neurologicaldisorder #brain #edu #edutokmotivation #edutok #neurology #disease
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X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs. #genetics #neurologicaldisorder #brain #edu #edutokmotivation #edutok #neurology #disease
111.1K viewsOct 5, 2022
TikTokneurologyminute
Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
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Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
515 views6 months ago
YouTubeChristie & Ken ALD - No Limits
How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
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How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
1K views7 months ago
YouTubeChristie & Ken ALD - No Limits
When a VUS was hidden how we confirmed Grandpa had adrenoleukodystrophy #adrenoleukodystrophy
1:06
When a VUS was hidden how we confirmed Grandpa had adrenoleukodystrophy #adrenoleukodystrophy
965 views2 months ago
YouTubeChristie & Ken ALD - No Limits
International Adrenal Disease Awareness Day
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International Adrenal Disease Awareness Day
3 months ago
YouTubeAlex TLC
1:33
What I'd do with one day without ALD #adrenoleukodystrophy #ald #nolimits #rarediseases
323 views6 months ago
YouTubeChristie & Ken ALD - No Limits
1:00
adrenoleukodystrophy symptoms part 4 #youtubeshorts#ald awareness #shortsfeed
64 viewsAug 30, 2025
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIES IN INDIA
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Adrenoleukodystrophy में BMT कब कराए??#viral #bonemarrow #youtubeshorts #adrenoleukodystrophy
32 views4 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIES IN INDIA
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The Untold Story Behind Maxxine Dupri's Strength.
19 views5 months ago
YouTubeImpaulsivecliper
0:58
West Valley firefighter's son in need of bone marrow transplant to survive rare disease
2.4K viewsAug 5, 2025
YouTubeKUTV 2 News Salt Lake City
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Duniaku sedang tidak baik2 saja, begitu cepatnya kondisi EL drop dari yang tadinya luar biasa aktif menjadi drop dengan sangat cepat karena suatu penyakit yang bahkan tidak pernah kudengar sebelumnya pernah ada di dunia ini #sonshine #adrenoleukodystrophy #ALD #XALD #leukodystrophy #leukodystrophyawareness #raredisease #miracleshappen #fyp #indonesia
2.2M viewsFeb 25, 2025
TikTokclara_inge1
3:04
Getting out of the house is a great option on days when my daughter is highly sensory seeking. Driving with the windows down, walking around, these can all help change up the day. #momtok #disability #disabled #disabilitytiktok #disabilityawareness #momsontiktok #specialneeds #parentsoftiktok #grwm #ditl #dayout #momofdisabledchildren #adrenoleukodystrophy #refsumdisease
1.7M viewsJul 11, 2024
TikTokadaptivemama
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Site Maintenance
2.2M viewsAug 25, 2023
TikTokimanramadhanii
0:45
Kisah Perjuangan Iman dan Adrenaleukodystrophy
586.7K viewsDec 1, 2023
TikTokimanramadhanii
1:16
Navigating Night Drives with My Daughter's New Medicine
31.4K viewsJun 24, 2025
TikTokadaptivemama
0:21
Ganti selang NGT dulu, ga terasa sudah 1 bln EL pakai selang NGT, kadang sedih liatnya karna dulu EL suka bgt makan nasi dan selalu lahap kalo makan, but life must go on and i have to be strong for EL 💪 #ceritamamael #miraclebaby #adrenoleukodystrophy #ALD #XALD #leukodystrophy #raredisease #specialneeds #sonshine #indonesia #selangNGT #fyp
21.2K viewsMar 5, 2025
TikTokclara_inge1
0:41
It can be tough to have “traditional”family time as a family with a disabled child, but that just means we make it our own and figure out what works for us ! #familytime #movie #exhaustedmom #disabilityawareness #disability #specialneeds #adrenoleukodystrophy #familymovienight #parentingtips
45.6K viewsJul 4, 2024
TikTokadaptivemama
0:12
Panduan NGT dan Alat Feeding untuk Anak
27.8K viewsMar 29, 2025
TikTokclara_inge1
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