Sanfilippo Syndrome, otherwise known as Childhood Alzheimer’s, is a terminal diagnosis. One family used their diagnosis to drive research for a cure. InvestigateTV shares their story today at 3:30 p.m. on KFVS12. | KFVS-TV
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Sanfilippo Syndrome, otherwise known as Childhood Alzheimer’s, …
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Life with Sanfilippo Syndrome presents unique challenges to every aspect of life. Families of children with Sanfilippo Syndrome are generously allowing us to share with you how they tackle different aspects of their life to ensure their child has the best care and quality of life. And it couldn’t be more poignant than to launch this series on #RareDiseaseDay. Meet Julie, mom of 21-year-old Alex who has Sanfilippo Syndrome Type B. She is sharing their nighttime routine with Alex, some of the chal
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Life with Sanfilippo Syndrome presents unique challenges to eve…
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Sadie was born with Sanfilippo syndrome, a rare genetic conditio…
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