My husband and I learned that our daughter was born with a rare disease known as Batten Disease when she was 3 years old. Batten Disease is a neurodegenerative childhood disease that I wouldn’t wish on anyone. It’s tragic. Emma is 8 years old in this video. Samuel, her brother, is 2. In a lot of ways, Emma is on the same developmental level as her brother. But in many ways, she is just like a normal 8 year old. We have learned to embrace little moments like laughter in our home. It truly lessens
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